What AAC means
Augmentative and alternative communication (AAC) covers any way of communicating other than speech. Communication Matters explains it in two parts. Unaided AAC uses gesture, body language and signing, such as Makaton. Aided AAC uses picture boards and symbol books, through to tablets and eye-gaze devices.
GeneReviews notes that most people with PURA syndrome will need AAC. It advises that a speech and language therapist experienced in AAC works alongside PT or OT so the system and seating or positioning suit the child.
Getting impartial advice
Your child's speech and language therapist is the usual starting point. Ace Centre is a charity specialising in AAC and assistive technology, with a free advice line. Suppliers listed here, such as Tobii Dynavox, Smartbox and Liberator, can demonstrate equipment. Do get independent advice before buying, because the best system depends on your child.