Made by a PURA parent in the UK. Information only, not medical advice. Read our disclaimer.

Physiotherapy, OT & speech therapy

Getting physiotherapy, OT and speech and language therapy for your child in the UK

How UK families usually access children's physiotherapy, occupational therapy and speech and language therapy, how to check a private therapist, and how to get the most from sessions.

By PURA Family Directory team · published

Information only, not medical advice. Every child with PURA syndrome is different. Please talk to your child's own doctors and therapists before making decisions about their care. In an emergency call 999; for urgent advice call NHS 111. Our disclaimer.

Why therapy matters for many PURA families

The PURA Syndrome Foundation says physiotherapy, occupational therapy and speech and language support are the therapies PURA families use most (FAQ). The Foundation's clinician handout, which draws on the GeneReviews chapter, lists 'physical and occupational therapy as needed' and 'speech and language support; review AAC needs' in its long-term follow-up checklist. Exactly what your child needs is for their own team to decide.

How NHS therapy usually works

Children's community therapy is normally reached by referral from a health professional, such as your paediatrician, GP or health visitor. Waiting lists and how services are organised vary by area. If you are not sure whether a referral has been made, ask for a copy of the referral letter and the name of the service. If your child has, or may need, an EHC plan, therapy that supports their education can be written into it.

If you choose private therapy

Some families add private sessions. In the UK, physiotherapists, occupational therapists and speech and language therapists must be registered with the Health and Care Professions Council. You can check anyone on the HCPC register. Independent speech and language therapists can be found through ASLTIP, and occupational therapists through the RCOT directory. The APCP has information about children's physiotherapy.

Getting the most from therapy

Agree two or three goals that matter to your family, such as sitting supported to play, eating more comfortably or making a choice. Ask for a home programme you can realistically fit into the day. Ask how the private therapist, the NHS team and school will share goals, because joined-up plans are less tiring for everyone. Videos of your child at home can help therapists who only see them briefly.

Questions families ask

Can I refer my child myself?

Some areas accept self-referral for certain children's services. Others need a professional referral. Your health visitor, GP or local council's Local Offer website can tell you how it works where you live.

Is more therapy always better?

Not necessarily. Rest, play and family time matter too. Ask your child's therapists what is realistic and safe for your child.

Sources

Checked 1 November 2026. Rules, rates and services change, so always check the latest version.

This article is part of our guide to Physiotherapy, OT & speech therapy. See all therapists listings →