PURA Family Directory · purasyndrome.app
Intensive therapy programme
For calls or visits with an intensive or block therapy centre, before you commit.
Before the appointment
- Your child's latest therapy reports
- Your goals for a programme, written down
- A note of dates, travel and budget
Questions to ask
- Are the therapists HCPC-registered, or what qualifications do they hold?
- Have they worked with children with very low tone, complex epilepsy or rare genetic conditions?
- What is the plan if my child has a seizure during a session?
- How do they make goals specific and measure progress?
- Will they share reports with my child's NHS team?
- What does the full cost include, and what are the cancellation terms?
- How intense is each day, and how are rest and feeding handled?
- Can we speak to other families who have attended?
- What happens after the block ends?
Notes
Information only, not medical advice. Always follow your child's own team. purasyndrome.app/checklists/intensive/ · checked 1 Nov 2026