Made by a PURA parent in the UK. Information only, not medical advice. Read our disclaimer.
✓ PURA-experienced

University of Southampton – PURA Global Network

The research group (led by Professor Diana Baralle) behind the first description of PURA syndrome in 2014 and the UK-sponsored PURA Syndrome Longitudinal Natural History Study.

✓ PURA-experienced: our evidence

University project page for the PURA Global Network natural history study.

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This badge means the provider publicly states PURA experience. It is not an endorsement or quality rating.

TypeUniversity research group
AreaSouthampton, England
SourcesUniversity project page · Health Research Authority summary
Last checked1 November 2026

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