Made by a PURA parent in the UK. Information only, not medical advice. Read our disclaimer.
PURA-specific

Unique – PURA and 5q31.3 deletion syndrome family guide

A free, plain-language family guide to PURA syndrome and 5q31.3 deletions from Unique, the UK rare chromosome and gene disorder charity.

TypeCharity information guide
AreaUK-wide
SourcesUnique guide (PDF) · Unique website
Last checked1 November 2026

Details change. Please confirm directly with the provider. Something out of date? Tell us. Listing here is free and not an endorsement.