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Made by a PURA parent in the UK. Information only, not medical advice. Read our disclaimer.
Printable tool

Care pack: “All about me”

A passport you fill in once and print for hospital stays, respite, school, clubs and new carers. Type straight into the boxes, or print a blank copy to fill in by hand.

  • Stays on your device
  • Prints on 2 to 4 A4 pages
  • Not medical advice

Your details stay on this device

Nothing you type here is sent to us or anyone else. It is saved only in this browser (using local storage) so you can come back and finish later. On a shared or public computer, use Delete my details when you've finished.

Saving needs JavaScript, which is switched off. You can still type and print, but nothing will be saved.

PURA Family Directory · purasyndrome.app/care-pack/

All about me

Please read this before supporting me. My family filled it in. It is not medical advice: always follow my own care plans and the professionals who know me.

About me
For example: PURA syndrome
How I communicate
Speech, sounds, signs, Makaton, gestures, facial expressions…
Name of my device or board, where it's kept, how to set it up
Pain and distress
Seizures
Describe them in your own words
Copy this from the plan agreed with my doctors. This site doesn't give medical advice.
Eating, drinking and swallowing
For example: textures, thickened drinks, tube feeding, equipment
Moving around
Walking, wheelchair, standing frame, hoist…
Senses
Things I'm sensitive to: noise, light, touch, smells
Likes and dislikes
Key contacts
WhoNamePhone or email
Medication (as my family lists it)

Copy these exactly from the label or prescription. This is a record for others, not advice.

MedicineDoseWhenNotes
Anything else

Made with the free care pack at purasyndrome.app/care-pack/. Information only, not medical advice.

Tip: our moving to adult services checklist and hospital passport entry explain where a pack like this helps.