Search
Made by a PURA parent in the UK. Information only, not medical advice. Read our disclaimer.
Printable checklist

Moving to adult services: what to ask

For transition reviews, benefit changes and adult care assessments, from about 14 onwards. Rules differ in England, Wales, Scotland and Northern Ireland.

  • Fits on one A4 page
  • Not medical advice
More on PURA groups & specialistsRead the guide

Adult teams won’t know your son or daughter yet. Our printable care pack (“All about me”) helps you share communication, seizure plan, feeding and contacts in one place.

PURA Family Directory · purasyndrome.app

Moving to adult services

For transition reviews, benefit changes and adult care assessments, from about 14 onwards. Rules differ in England, Wales, Scotland and Northern Ireland.

Name: Date: With:

Before the appointment

  • Current education plan (EHCP, IDP, CSP or statement) and latest review
  • Benefit letters (DLA, CDP, PIP or ADP)
  • List of professionals, medicines and the genetic report
  • Hospital passport or one-page profile

Questions to ask

  1. Who will co-ordinate the move to adult services, and when does planning start?
  2. Is the education plan being reviewed with adulthood in mind, and when does it end here?
  3. Which benefit comes next where we live: PIP, or Adult Disability Payment in Scotland? When do we apply?
  4. Do we need an appointee to manage benefits?
  5. Can we have an adult social care assessment, and a carer's assessment for me?
  6. Should complex health needs be assessed for CHC or the local equivalent?
  7. What does capacity law here mean for decisions? Do we need power of attorney, deputyship or guardianship?
  8. Are they on the GP learning disability register? When is the next health check?
  9. Which adult teams take over from paediatrics, and who do we call in between?
  10. Would a clinical genetics review help, and can relatives have genetic counselling?

Notes

Information only, not medical advice. Always follow your child's own team. purasyndrome.app/checklists/adult-services/ · checked 1 Nov 2026