PURA Family Directory · purasyndrome.app
Physio, OT and speech therapy
For a first assessment with an NHS or private therapist.
Before the appointment
- Recent clinic letters and your child's genetic diagnosis
- Notes or videos of how your child moves, plays, eats and communicates
- What you'd most like help with day to day
Questions to ask
- What are the main goals for the next few months?
- How often will we see you, and for how long?
- What can we practise at home, and how often?
- Will you work with my child's other therapists and nursery or school?
- Do you have experience with very low muscle tone or rare genetic conditions?
- Is there any equipment that might help, and who provides it?
- How will we know whether therapy is helping?
- Who do we contact if things change between sessions?
- If you're private: are you HCPC-registered, and what are the costs?
Notes
Information only, not medical advice. Always follow your child's own team. purasyndrome.app/checklists/therapy/ · checked 1 Nov 2026