Disability Living Allowance (DLA) for children – GOV.UK
May help with the extra costs of looking after a disabled child under 16 (England and Wales). Official eligibility and how to claim.
Step 3 of 4
Claim the support you're due
Most families of a child with PURA syndrome can get some financial and practical help. It's worth claiming early, because forms take time.
DLA (Child Disability Payment in Scotland) isn't means-tested and can open the door to other help, such as Carer's Allowance and a Blue Badge.
You can also ask your council for a needs assessment for your child, a carer's assessment for yourself, and short breaks. For nursery and school, talk to the SENCO about support and an EHC plan.
Things you might do
- Start a DLA or Child Disability Payment claim
- Check Carer's Allowance and Carer's Credit
- Ask your council for a carer's assessment and its short breaks offer
- Look at grants from charities such as Family Fund
Read next
Benefits & grants
Applying for DLA for a child with PURA syndrome: a practical guide
3 min readReviewed 1 Nov 2026
Benefits & grants
Carer's Allowance and Carer's Credit explained for parents of a child with PURA syndrome
3 min readReviewed 2 Nov 2026
Respite & short breaks
How to ask your council for short breaks (respite) and a carer's assessment
2 min readReviewed 1 Nov 2026
Family support
Getting an EHC plan (EHCP) for your child: a step-by-step guide for families in England
3 min readReviewed 1 Nov 2026
Useful listings
Child Disability Payment – mygov.scot
Scotland's replacement for child DLA: rates, who should apply and how to apply.
Family Fund
Grants for families on a low income raising a disabled or seriously ill child, for things they need most.
Contact – for families with disabled children
UK charity giving families information and advice on benefits, education, health and social care.