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Made by a PURA parent in the UK. Information only, not medical advice. Read our disclaimer.
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Emergency info card

A wallet-sized card and a phone lock-screen image with the key facts paramedics and A&E staff need: condition, communication, medicines, allergies and who to call.

  • Stays on your device
  • Wallet card + lock screen
  • Not medical advice

Your details stay on this device

Nothing you type here is sent to us or anyone else. Your card is saved only in this browser so you can update it later. The lock-screen image is made on your device too. On a shared or public computer, delete it when you’ve finished.

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Print it, cut along the lines and fold in the middle. Laminating helps it last.

Emergency information

PURA syndrome A rare genetic condition. It can affect speech, movement and feeding, and some people have seizures.

Communication:

Contacts: ·

Medical notes

Medicines:

Allergies:

Clinicians: information about PURA syndrome at purasyndrome.app/research/#psf-clinician-handout

Follow my care plan. Made by my family at purasyndrome.app. Not medical advice.

Doctors and nurses who don’t know PURA syndrome can find the PURA Syndrome Foundation’s clinician handout through our research page. You might also like the care pack and the seizure diary.

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